Gourt > Health > Conditions and Diseases > Rare Disorders > Pierre Robin Syndrome
Pierre Robin syndrome refers to a sequence of abnormalities that may occur as a distinct syndrome or as part of another underlying disorder. Pierre Robin syndrome is characterized by an unusually small jaw (micrognathia), downward displacement or retraction of the tongue (glossoptosis), and incomplete closure of the roof of the mouth (cleft palate).
More on [ Pierre Robin syndrome ]
PIERRE ROBIN SYNDROME cleft palate Retrognathia Glossoptosis Resp n feeding diff
Ayaskant12 (Ayaskant sahoo) Sun, 27 Sep 2009 05:41:00 -0000
PIERRE ROBIN SYNDROME cleft palate Retrognathia Glossoptosis Resp n feeding diff
Chase's Story - Personal account of one child's experience of this condition. Includes photographs.
Meta Description: [ Chase was born on July 5th, 1999 with a rare condition called Pierre Robin Sequence (PRS). This site is about him. ]
Contact a Family: Pierre Robin Syndrome - Main features of the condition and possible causes.
Meta Description: [ Contact a Family is a UK charity for families with disabled children. We offer information on specific conditions and rare disorders. ]
NORD - Pierre Robin Syndrome - Sample report, plus links to organisations. [Fee required for full report]
Meta Description: [ National Organization for Rare Disorders is dedicated to helping people with rare, orphan diseases. Rarediseases.org contains information on the prevention, treatment and cure of rare diseases. ]
Pierre Robin Network - Provides general information about the condition, including genetics, issues and a glossary. Also offers an email group, message board, and personal accounts.
Meta Description: [ Pierre Robin Network is a group of parents,
family members, professionals and adults who have an interest in Pierre Robin
Sequence. We network and offer information so we can learn from our
experiences. ]
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