Conditions and Diseases Organizations

National Institutes of Health (NIH) News Releases

Schizophrenia and Bipolar Disorder Share Genetic Roots
Wed, 01 Jul 2009 15:45:00 -0400
A trio of genome-wide studies -- collectively the largest to date -- have pinpointed a vast array of genetic variation that cumulatively may account for at least one third of the genetic risk for schizophrenia. One of the studies traced schizophrenia and bipolar disorder, in part, to the same chromosomal neighborhoods.
Imaging Technique Allows Researchers to Monitor Protein Changes in Mouse Tumors
Wed, 01 Jul 2009 12:05:00 -0400
A new imaging technique can monitor, in living mice, the HER2 protein found in above-normal amounts in many cases of breast cancer as well as some ovarian, prostate and lung cancers. This new approach, once validated in mice and pending further experiments, could provide a real-time noninvasive method for identifying tumors in humans who express HER2 and who would be candidates for targeted therapy directed against this protein. It may also provide real-time information that will help clinicians optimize treatment for individual patients. The study, published in the July 2009 issue of The Journal of Nuclear Medicine, was conducted by researchers at the National Cancer Institute (NCI) and the National Institute of Biomedical Imaging and Bioengineering, both parts of the National Institutes of Health.
Dynasty: Influenza Virus in 1918 and Today
Tue, 30 Jun 2009 09:10:00 -0400
The influenza virus that wreaked worldwide havoc in 1918-1919 founded a viral dynasty that persists to this day, according to scientists from the National Institute of Allergy and Infectious Diseases (NIAID), part of the National Institutes of Health. In an article published online on June 29 by the New England Journal of Medicine, authors Anthony S. Fauci, M.D., Jeffery K. Taubenberger, M.D., Ph.D., and David M. Morens, M.D., argue that we have lived in an influenza pandemic era since 1918, and they describe how the novel 2009 H1N1 virus now circling the globe is yet another manifestation of this enduring viral family.

CNN.com - Health

Police: Hospital worker swiped shots, spread hep C
Fri, 03 Jul 2009 18:18:42 -0400
A former hospital employee may have exposed hundreds or thousands of surgical patients to hepatitis C when she replaced clean needles filled with the powerful painkiller fentanyl with her own dirty needles filled with saline solution.
Health.com picks top beach, lake getaways
Fri, 03 Jul 2009 13:47:40 -0400
We know your summer vacation time is precious: You want to land where you can truly relax, breathe fresh air, get in some exercise and eat well -- without breaking the bank. That's why we teamed up with a panel of travel and health experts to help us find the healthiest of the nation's most popular beach and lake towns.

 

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Alabama Head Injury Foundation - Provides support, referrals, recreation, resources, advocacy, community education, housing assistance, and information about events and meetings.

Brain and Spinal Cord Injury Program - The Florida Department of Health offers acute care, in-patient and outpatient rehabilitation, transitional living services, adaptive equipment, home modifications, and other services necessary for community reintegration. The BSCIP also provides public information, prevention, education and research programs.

Brain Injury Coalition of Greater Cleveland - Identifies services and service gaps centering on the needs of survivors of brain injury. News, events, case reviews, and resources for the traumatically brain injured.
Meta Description: [ Brain Injury Coalition of Greater Cleveland (BIC): identifies services and service gaps centering on the needs of survivors of brain injury. Serves as the inter-agency link between service providers for comprehensive planning and problem-solving. List of resources for the traumatically brain inju... ]

500 Brain Injury Society - Serves acquired and traumatic brain injured individuals and their families. Contains information on ABI/TBI, legal issues, state's legal definition of TBI, SSI tips, online newsletters and a chat room.
Meta Description: [ Brain Injury Society Home Page ]

404 Brain Injury Support Group of Portland - Support for brain-injured people, their loved ones, and their caregivers. Offers information and referral, peer counseling, news, and references.
Meta Description: [ Support for brain-injured people, their loved ones, and their caregivers in Portland, Oregon. ]

BrainHelp - Addressing the challenges faced as a result of brain haemorrhage or injury. Using streaming technology and other technologies, offers the following services; interactive chat, forums, Web advice, links to interesting sites, and a relaxation room.
Meta Description: [ brain haemorrhage, relaxation. Addressing Challenges Faced as a Result of brain haemorrhage or injury for Sufferers, their Families and Carers. brain haemorrhage, advice, chat. ]

Cafe Plus - Coffee shop for survivors of a head-injury to help combat feelings of isolation and assist in re-connecting socially and making friendships. Located in East Syracuse, New York.
Meta Description: [ Homepage for Cafe Plus coffee shop for head-injured survivors ]

Central Okanagan Brain Injury Society - Services include case management, family support, advocacy, public education, career counseling, work experience, job placement, job coaching and long term followup to TBI/ABI survivors in British Columbia.

Coma Recovery Association - A non-profit organization for coma and brain injury survivors, family members, friends and professionals. Offerings include mutual aid and support, support group meetings, general information, referrals and advocacy.
Meta Description: [ Coma Recovery Association, Inc. is a non-profit organization founded in 1980 by the family members of comatose patients. We offer mutual aid and support, support group meetings, general information, referrals and advocacy. ]

European Brain Injury Society (E.B.I.S.) - Brings the many professionals and associations involved in the field of brain injury together with the survivors and their families. Projects include developing evaluation guidelines, research in the Epidemology, database on medical, scientific and social aspects, seminars and training, promoting support groups and public awareness.

Governor's Task Force on Traumatic Brain Injury - Members resources, minutes, meeting times, and surveys. Also provides tasks to review, analyze, and recommend changes in Oregon's response, programs, and policies for TBI survivors and their families.

Head Injury Society of New Zealand - Provides basic information about brain injury, professional articles, poetry, stories, a newsletter, chat room, and contacts for local support groups.
Meta Description: [ Head Injury Society of New Zealand - the voice of those affected by head injury ]

Headway UK - Brain injury association is a registered charity in England. Its aims are to promote understanding of all aspects of head injury and to provide information, support and services to people who have suffered a head injury, their family and carers.

Heather Bublick Rehabilitation Foundation - Help a young woman in her struggle to overcome Traumatic Brain Injury and regain her life. Her dreams tragically taken away while crossing a street on the college campus, the family cannot pay for the rehabilitation and other treatment she requires, and is requesting monetary donations. Offers the BrainStorm Wristbands for sale.

Momentum Scotland - Pioneered the UK's first vocational rehabilitation service for people with traumatic brain injury. Services include community integration, mental health, employment support, job-retention programs, supported living, and assistive technologies.

National Association of State Head Injury Administrators (NASHIA) - Assisting state government in promoting partnerships and building systems to meet the needs of individuals with brain injury and their families. Offers documents, fact sheets, information about state and federal programs, and an event calendar.
Meta Description: [ Brain injury policy, program, and service resources for state employees and others interested in state government. NASHIA assists state government in promoting partnerships and building systems to meet the needs of individuals with brain injury and their families. ]

Oregon Brain Injury Resource Network (OBIRN) - A statewide resource center improving access to Brain Injury information. Offers resource and literature databases, family advocacy, educational consultants, and a bibliography. A library and newsletter are available to members.
Meta Description: [ OBIRN is a statewide resource center for information on Brain Injury. Our mission is to improve access to information for Oregonians with Brain Injury, OBIRN is a statewide resource center for information on Brain Injury. Our mission is to improve access to information for Oregonians with Brain... ]

Pittsburgh Area Brain Injury Alliance - Provides peer support, group development, advocacy, information on TBI and prevention, and contacts for local support groups.
Meta Description: [ People helping people since 1981. Peer support for people recovering from Head Trauma and Brain Injury. ]

Spirit of Suzi Foundation - Bringing the joy and excitement of flying in small aircraft to survivors of traumatic brain injury. Scholarships available.
Meta Description: [ Survivors of traumatic brain injury are introduced to the joys of flying in small aircraft. Aviation scholarships provided. ]

The Brain Trust - A non-profit organization providing emergency funding for essential goods and services to people with mild or moderate traumatic brain injury in Colorado.
Meta Description: [ Our Mission: To provide emergency funds for essential goods and services for persons with mild/moderate traumatic brain injury and to promote education about brain injury. Even though the term to describe a brain injury is 'mild', the injury itself is not mild. It can be life changing and throws... ]

The Child Brain Injury Trust (CBIT) - Aims to improve the quality of life for children and youth with a brain injury by providing a helpline, events, conferences, research, advocacy, grants, and funding information. Offers details about the family impact, medical aspects, educational concerns, legal issues, support groups, and resources throughout the UK.
Meta Description: [ The Child Brain Injury Trust (CBIT) aims to improve the quality of life for all children and young people who have an acquired brain injury (ABI) and to enable them to achieve their full potential. ]

The New York Academy of Traumatic Brain Injury - A multidisciplinary, not-for-profit organization, dedicated to educating the professional, governmental, and public communities about traumatic brain injury (TBI). Information available on conferences and membership.
Meta Description: [ The Academy is a multi-disciplinary, New York State, not-for-profit organization, dedicated to the traumatic brain injury (TBI) education. ]

The Wayne Howard Trust - The provision of advice, information, and financial assistance for the purchase of adaptive equipment and specialized treatment for persons in England who have suffered a brain injury, their families, and carers.

Traumatic Brain Injury Technical Assistance Center - Established to help states develop programs that improve access to health and services for individuals with TBI and their families. Offers guidance, assessments, training, resource materials, technical assistance, and an annual conference. Administered by the Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau.

United Kingdom Acquired Brain Injury Forum (UKABIF) - Promotes understanding of all aspects of Acquired Brain Injury and provides expert input to UK policy makers by setting up working parties and conferences to discuss any aspect of acquired brain injury. The Forum addresses medical, social welfare, education, housing, vocational, financial, legal, and other issues in which brain injured people and their carers require representation.

Vancouver Island Head Injury Society - Non-profit group providing support, information, and activities for people with brain injuries, their families, and the people who support them in Victoria, B.C., Canada.

Waikato Head Injury Society - Provides advocacy, education, referral, counseling and support services to brain injured individuals in New Zealand. Check for meeting and event schedules as well as guides to understanding brain injury, coma, concussion, fatigue, solvent neurotoxicity, and rehabilitation.
Meta Description: [ Head Injury, what is it. Waikato Head injury society. Advocacy , information and support the the brain injured their families and friends ]

Weiss ABI Work Support Group - The New Orleans chapter for people with acquired brain injuries. Provides meeting information, resources, and writings by support group members.