Genetic Disorders
Rare Disorders :: Conditions and Diseases

Neurofibromatosis - Twitter Search

Neurofibromatosis in children: Warts and moles in children may be an early indication of complicated health issues ... http://bit.ly/6lbEE3
DudesNFitness (Dudes N Fitness) Thu, 17 Dec 2009 19:09:20 -0000
Neurofibromatosis in children: Warts and moles in children may be an early indication of complicated health issues ... http://bit.ly/6lbEE3
@blueyebutterfly Neurofibromatosis?
CherylAnneNY (Cheryl W) Thu, 17 Dec 2009 19:02:42 -0000
@blueyebutterfly Neurofibromatosis?
Your Tax Dollars at Work- Can NIH and FDA Do it Better? http://bit.ly/7jmOR9 - More from the #PartneringforCures meeting #neurofibromatosis
ChildrensTmrFdn (Children's Tumor Fdn) Thu, 17 Dec 2009 16:55:26 -0000
Your Tax Dollars at Work- Can NIH and FDA Do it Better? http://bit.ly/7jmOR9 - More from the #PartneringforCures meeting #neurofibromatosis
natural history & biology of skin neurofibromas in neurofibromatosis type 1 http://bit.ly/6gZHNg
localtrials (US Clinical Trials ) Thu, 17 Dec 2009 11:06:43 -0000
natural history & biology of skin neurofibromas in neurofibromatosis type 1 http://bit.ly/6gZHNg
natural history & biology of skin neurofibromas in neurofibromatosis type 1 http://bit.ly/6gZHNg
usclinicaltrial (US Clinical Trials) Thu, 17 Dec 2009 10:34:44 -0000
natural history & biology of skin neurofibromas in neurofibromatosis type 1 http://bit.ly/6gZHNg
natural history & biology of skin neurofibromas in neurofibromatosis type 1 http://bit.ly/6gZHNg
recruitingtrial (Recruiting Trials) Thu, 17 Dec 2009 09:50:44 -0000
natural history & biology of skin neurofibromas in neurofibromatosis type 1 http://bit.ly/6gZHNg

 

Subscribe to Neurofibromatosis RSS feed

British Columbia Neurofibromatosis Foundation - BCNF is a membership driven organization, which empowers individuals with NF and their families to reach their full potential by providing support, education and research funding.
Meta Description: [ The BCNF was established in 1984 to respond to the needs of the community. This included individuals with NF, newly diagnosed people, parents of children newly diagnosed, physicians and other concerned individuals such as community agencies, educators and therapists. ]

Neurofibromatosis - Information page compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
Meta Description: [ Neurofibromatosis information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS). ]

Neurofibromatosis Association of Australia Inc. - Support group for people with neurofibromatosis. Has a medical and scientific advisory board and close affiliation with similar NF groups overseas.

Neurofibromatosis Clinic at M. D. Anderson Cancer Center - Information about neurofibromatosis and details of Center which provides diagnosis, treatment, patient education, and relevant research.

Neurofibromatosis Clinics Association Volunteer Opportunities - Details of many ways to volunteer to help the Neurofibromatosis Clinics Association.

Neurofibromatosis Clinics Association, Inc. - A non-profit organization for people with NF and their families.

Neurofibromatosis Network - Links to European neurofibromatosis laygroups.

Neurofibromatosis Resources - Links, with reviews, to information about neurofibromatosis 1 (Von Recklinghausen's disease. Personal pages.
Meta Description: [ Lots of links to understandable information about NF and acoustic neuroma, conditions associated with those disorders, personal stories, and hard-to-locate photos of visible signs of NF-1. ]

Neurofibromatosis Resources - Photographs - Photos of cafe au lait spots and external neurofibroma tumors.
Meta Description: [ Links to photos of cafe au lait spots and external neurofibroma tumors ]

Neurofibromatosis(Von Recklinghausen's disease) - A review of the most important aspects on physical examination, classification and treatment, for medical students.
Meta Description: [ Neurofibromatosis(Von Recklinhausen disease): A review of the most important aspects on physical examination, classification and treatment. ]

Neurofibromatosis, Inc. - Support and information for those with Neurofibromatosis.
Meta Description: [ Neurofibromatosis, Inc. ]

NexGenix Pharmaceuticials - Drug therapies for the treatment of two genetic disorders: neurofibromatosis type 1 (NF1) and neurofibromatosis type 2 (NF2). Find overviews, clinical trials and news.

NF2Crew - On-line discussion group for people with neurofibromatosis 2.
Meta Description: [ The NF2Crew a Neurofibromatosis online support group ]

Race for NF Research - Dedicated to promoting awareness of Neurofibromatosis. It also contains the latest research as well as fund raising programs (Marathons, racing, walking, etc) that raise money towards NF research.

The Children's Tumor Foundation - Dedicated to improving the health and well being of individuals and families affected by the neurofibromatosis (NF).
Meta Description: [ A non-profit 501(c)(3) medical foundation, dedicated to improving the health and well being of individuals and families affected by the neurofibromatosis or NF ]

The National Neurofibromatosis Foundation (NNFF) - Comprehensive information sponsored by the National Neurofibromatosis Foundation for people with NF, and links to other sites.
Meta Description: [ A non-profit 501(c)(3) medical foundation, dedicated to improving the health and well being of individuals and families affected by the neurofibromatosis or NF ]

The Neurofibromatosis Association UK - Information about the UK Association, including family support, membership details and local group contacts.

Understanding Neurofibromatosis - This information will explain what NF is, what causes NF, what your family will need to do about it, and who can help you. From the University of Chicago Comer Children's Hospital.
Meta Description: [ This information is for families who have recently been told that one member may have neurofibromatosis (NF). ]