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Genetic Disorders

A Guide for Parents - This booklet is for people with someone in their family who has Duchenne muscular dystrophy. Includes an overview, medical and surgical care, general care, emotional support and every day living.

Becker Muscular Dystrophy Information Exchange - Serves as a place for persons with Becker Muscular Dystrophy to exchange information and communicate with others about the disease.

DMD Information and Resources for Teachers - Information for teachers of children with Duchenne Muscular Dystrophy (DMD).
Meta Description: [ DMD Links for Teachers ]

DMD Options - Lifestyle options, conventional medical interventions and information for people interested in Duchenne muscular dystrophy.

DMD Pioneers - Resource website about Prolonged Survival for people with Duchenne Muscular Dystrophy.

DoctorBach.com - This site highlights the work of Dr. John R. Bach and provides information about Non-Invasive Ventilation (NIV) and pulmonary care.

Duchenne/Becker Muscular Dystrophy - Section of Your Genes, Your Health Website focusing on Duchenne and Becker Muscular Dystrophy. Includes key facts and animated slide shows of causes, diagnosis and treatment of Duchenne Becker Muscular Dystrophy.

Duchennes - Provides links to medical and non-medical organizations and people with Duchennes problems.

FSH-MD Support Group - Provides support for those with Facio Scapulo Humeral and their carers.
Meta Description: [ Welcome to the Web Site for the FSH (Facio Scapulo Humeral) Support Group of Great Britain. The members of the group are made up from people in the UK with FSH, & their relatives. ]

General Practice Notebook - Duchenne muscular dystrophy - Clinically-oriented information.

Living For Today, Preparing For Tomorrow - Reference for parents of boys with Duchenne Muscular Dystrophy. Along with practical and health-related articles are poetry and personal stories.
Meta Description: [ Living For Today is an expanding resource to help parents of boys with Duchenne Muscular Dystrophy. By Preparing For Tomorrow, it is easier to Live For Today. ]

MDA Ride For Life - Pennsylvania ride to benefit the Muscular Dystrophy Association. Information on results, money raised and its distribution. Sponsored by the Eastern Harley-Davidson Dealers Association, held annually in May.

Muscular Dystrophy Campaign - Muscular Dystrophy Campaign for Government funding. This has information about efforts to increase government spending for muscular dystrophy in the UK.
Meta Description: [ Muscular Dystrophy Campaign for Government funding. A simple less than a minute petition for someones life time ]

National Registry of Myotonic Dystrophy and FSHD Patients and Family Members - Connecting researchers and patients. Participation, purpose, investigators, personnel and contact information.
Meta Description: [ national registry of myotonic dystrophy and facioscapulohumeral muscular dystrophy patients and family members ]

NINDS Muscular Dystrophy Information Page - Muscular Dystrophy (MD) information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS).
Meta Description: [ Muscular Dystrophy (MD) information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS). ]