Gourt > Health > Conditions and Diseases > Neurological Disorders > Congenital Anomalies > Holoprosencephaly > Support Groups
In a support group, members provide each other with various types of nonprofessional, nonmaterial help for a particular shared burdensome characteristic. The help may take the form of providing relevant information, relating personal experiences, listening to others' experiences, providing sympathetic understanding and establishing social networks. A support group may also provide ancillary support, such as serving as a public relations voice or engaging in advocacy.
Maintaining contact
Support groups maintain interpersonal contact among their members in a variety of ways. Most groups have traditionally met in person in group sizes that allowed conversational interaction. Support groups also maintain contact through printed newsletters, telephone chains, internet forums, and mailing lists. Some support groups are exclusively Online_support_groups.
Membership in some support groups is formally controlled, with admission requirements and membership fees. Other groups are "open" and allow anyone to drop in at an advertised meeting, for example, or to participate in an online forum.
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Support Groups :: Complications
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Holoprosencephaly Family Support Site - UK Support Group for families of children with HPE and related brain malformations.
Messages from Miracles Foundation - Goals include providing emotional support to families, updated information on HPE and forming partnerships with businesses, organizations and the medical profession to help families and caregivers.
Yahoo! Groups: ausholoprosencephaly - Support group for parents and families of children with Holoprosencephaly within Australia.
Meta Description: [ ausholoprosencephaly: Holoprosencephaly - Australia ]
Yahoo! Groups: Holoprosencephaly - Support group for parents and families affected by HPE.
Meta Description: [ holoprosencephaly: Holoprosencephaly Support Group ]
Yahoo! Groups: HPElosssupport - For parents and families who have lost children to Holoprosencephaly.
Meta Description: [ HPElosssupport: Holoprosencephaly Loss Support ]
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