Anencephaly is a cephalic disorder that results from a neural tube defect that occurs when the cephalic (head) end of the neural tube fails to close, usually between the 23rd and 26th day of pregnancy, resulting in the absence of a major portion of the brain, skull, and scalp. Infants with this disorder are born without a forebrain - the largest part of the brain consisting mainly of the cerebrum - which is responsible for thinking and coordination. The remaining brain tissue is often exposed - not covered by bone or skin.
Support Groups for Grief, Loss and Bereavement
Complications Pregnancy and Birth
Neural Cord Defects :: Infants
Transplantation :: Health

Anencephaly - Jessicas Journey - A parent's personal experience, relating her daughter's story.
Anencephaly Information - Personal stories, photos, tips for creating memories, advice on taking photographs, and tips for midwives. [Information in English, German, French, Dutch, Spanish, Portuguese and Italian.]
Meta Description: [ informations sur l'anencephalie, une malformation congenitale fatale - informationen ueber anencephalie, eine angeborene, fatale missbildung - information about anencephaly, a fatal birth defect - informatie aangaande anencephalie, een aangeboren afwijking - informaci�n acerca de anencefalia, u... ]
Anencephaly Net - An internet hub providing facts about anencephaly. Includes fact sheets and links for pre-natal support, information, policy, grief support, and memorial sites.
Anencephaly Support Foundation - Non-profit support organization with information, personal stories, and resources for families, parents, and medical professionals.
Faith Aminah Shabazz - Personal story after a diagnosis of anencephaly while still in the womb. Faith was born in March 2001 and lived until October 2003.
Moral Principles Concerning Infants with Anencephaly - Notes from Committee on Doctrine National Conference of Catholic Bishops (U.S.).
NINDS: Anencephaly - Information sheet compiled by the National Institute of Neurological Disorders and Stroke.
Meta Description: [ Anencephaly information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS). ]
Yahoo! Groups: Anencephaly - Global Health Network support group open to anyone affected by anencephaly.
Meta Description: [ anencephaly: A Global Health Network Support Group ]
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Yahoo! Groups: Anencephaly Blessings from Above - A Christian pro-life support group for parents those carrying to term.
Meta Description: [ anencephalyblessingsfromabove: Anencephaly Blessings from Above - ABFA ]
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