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Anencephaly is a cephalic disorder that results from a neural tube defect that occurs when the cephalic (head) end of the neural tube fails to close, usually between the 23rd and 26th day of pregnancy, resulting in the absence of a major portion of the brain, skull, and scalp. Infants with this disorder are born without a forebrain - the largest part of the brain consisting mainly of the cerebrum - which is responsible for thinking and coordination. The remaining brain tissue is often exposed - not covered by bone or skin.

Effects


Infants born with anencephaly are usually blind, deaf, unconscious, and unable to feel pain. Although some individuals with anencephaly may be born with a rudimentary brainstem, which controls autonomic and regulatory function, the lack of a functioning cerebrum permanently rules out the possibility of ever gaining consciousness. Reflex actions such as respiration (breathing) and responses to sound or touch may occur. The disorder is one of the most common disorders of the fetal central nervous system.

Lifespan


Most of the people who suffer of anencephaly die in the womb of their mother, during childbirth or in the next few hours after the have exited the mother's body. Although in some cases, it has been known that certain babies have lasted a week and a half, and the current record of lifespan is of twelve years.

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lovelife and anencephaly are going away...
jchavezloeza (javier chavez) Wed, 16 Dec 2009 22:19:28 -0000
lovelife and anencephaly are going away...
RT @AnarchyMommy: Anencephaly, I hate you.: http://wp.me/pFPf5-6f
DrJenGunter (Jennifer Gunter) Sun, 13 Dec 2009 20:13:51 -0000
RT @AnarchyMommy: Anencephaly, I hate you.: http://wp.me/pFPf5-6f
Trending in science: Panic attack; DNA; Anencephaly; Swine influenza; Pioneer 10; AIDS. http://bit.ly/52PQ6g #panic #dna #h1n1 #aids
EllerdaleSci (Ellerdale Science) Sun, 13 Dec 2009 15:36:12 -0000
Trending in science: Panic attack; DNA; Anencephaly; Swine influenza; Pioneer 10; AIDS. http://bit.ly/52PQ6g #panic #dna #h1n1 #aids
Trending in science: Panic attack; DNA; Anencephaly; Swine influenza; Pioneer 10; AIDS. http://bit.ly/52PQ6g #panic #dna #h1n1 #aids
ellerdale (Ellerdale) Sun, 13 Dec 2009 15:36:11 -0000
Trending in science: Panic attack; DNA; Anencephaly; Swine influenza; Pioneer 10; AIDS. http://bit.ly/52PQ6g #panic #dna #h1n1 #aids
RT @AnarchyMommy: Anencephaly, I hate you.: http://wp.me/pFPf5-6f
LuvOrHate (Love or Hate Bot) Sun, 13 Dec 2009 12:35:23 -0000
RT @AnarchyMommy: Anencephaly, I hate you.: http://wp.me/pFPf5-6f
OMG was looking up about flathead syndrome on babies and found #anencephaly how sad, really sad!
niki_peel (Nicola Peel) Sun, 13 Dec 2009 12:01:04 -0000
OMG was looking up about flathead syndrome on babies and found #anencephaly how sad, really sad!

 
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Anencephaly - Jessicas Journey - A parent's personal experience, relating her daughter's story.

Anencephaly Information - Personal stories, photos, tips for creating memories, advice on taking photographs, and tips for midwives. [Information in English, German, French, Dutch, Spanish, Portuguese and Italian.]
Meta Description: [ informations sur l'anencephalie, une malformation congenitale fatale - informationen ueber anencephalie, eine angeborene, fatale missbildung - information about anencephaly, a fatal birth defect - informatie aangaande anencephalie, een aangeboren afwijking - informaci�n acerca de anencefalia, u... ]

Anencephaly Net - An internet hub providing facts about anencephaly. Includes fact sheets and links for pre-natal support, information, policy, grief support, and memorial sites.

Anencephaly Support Foundation - Non-profit support organization with information, personal stories, and resources for families, parents, and medical professionals.

Faith Aminah Shabazz - Personal story after a diagnosis of anencephaly while still in the womb. Faith was born in March 2001 and lived until October 2003.

Moral Principles Concerning Infants with Anencephaly - Notes from Committee on Doctrine National Conference of Catholic Bishops (U.S.).

NINDS: Anencephaly - Information sheet compiled by the National Institute of Neurological Disorders and Stroke.
Meta Description: [ Anencephaly information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS). ]

Yahoo! Groups: Anencephaly - Global Health Network support group open to anyone affected by anencephaly.
Meta Description: [ anencephaly: A Global Health Network Support Group ]

500 Yahoo! Groups: Anencephaly Blessings from Above - A Christian pro-life support group for parents those carrying to term.
Meta Description: [ anencephalyblessingsfromabove: Anencephaly Blessings from Above - ABFA ]

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