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Post-polio syndrome (PPS) is a condition that frequently affects survivors of poliomyelitis, a viral infection of the nervous system, after recovery from an initial paralytic attack of the virus. Typically the symptoms appear 20-40 years after the original infection, at an age of 35 to 60. Symptoms include new or increased muscular weakness, pain in the muscles, and fatigue.

Post-polio patients are also often noted to have memory problems, various cognitive difficulties, and an increased sensitivity to anesthetics. Weight gain is also a frequently noted symptom, though it's hard to tell if this is due to the disorder directly or due to the decreased level of physical activity that usually accompanies the disorder.

Fatigue is often the most disabling symptom, as often even slight exertion can produce disabling fatigue and also increase other symptoms.

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Motor Neuron Disease :: Neurodegenerative Diseases

 
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RT @UnitedSpinal With all the news about stem cells, what are their prospects for treating post-polio syndrome? http://bit.ly/41Mh5M
goodsocialnet (Good Social Network) Thu, 05 Nov 2009 21:59:07 -0000
RT @UnitedSpinal With all the news about stem cells, what are their prospects for treating post-polio syndrome? http://bit.ly/41Mh5M
With all the news about stem cells, what are their prospects for treating post-polio syndrome? http://bit.ly/41Mh5M
UnitedSpinal (United Spinal ) Thu, 05 Nov 2009 21:55:33 -0000
With all the news about stem cells, what are their prospects for treating post-polio syndrome? http://bit.ly/41Mh5M
@gerrykirk He died a miserable death a few years ago of post-polio syndrome.
AbbyObenchain (Abigail Obenchain) Wed, 04 Nov 2009 14:57:25 -0000
@gerrykirk He died a miserable death a few years ago of post-polio syndrome.
...acute exacerbation of COPD, vascular ulcers, fever after surgery, post-polio syndrome, bipolar disorder...
drtomprice (Thomas Price) Tue, 03 Nov 2009 19:01:40 -0000
...acute exacerbation of COPD, vascular ulcers, fever after surgery, post-polio syndrome, bipolar disorder...
My dad is home from ER, w/ a clean bill of health. He has post polio syndrome, so it was likely muscular. And I'm breathing easier today.
Chinchita (Juanita Gallagher) Fri, 30 Oct 2009 12:27:12 -0000
My dad is home from ER, w/ a clean bill of health. He has post polio syndrome, so it was likely muscular. And I'm breathing easier today.

 
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Gazette International Networking Institute (GINI) - Coordinator of International Polio Network (IPN) and International Ventilator Users Network (IVUN), collects, creates, and disseminates information for people with disabilities, specifically polio survivors and ventilator users. Information includes newsletters, directories, and books about independent living, home mechanical ventilation, and the late effects of poliomyelitis.

Post-Polio Syndrome Central - Search or browse this comprehensive listing of PPS [postpolio, post polio syndrome] internet resources, original papers, surveys and polls.
Meta Description: [ Post-Polio Syndrome Central: Search/Browse this complete, comprehensive, easy to use and up-to-date listing of internet Post Polio Syndrome Resourses - weekly polls,surveys and original content added daily. pps postpolio post-polio poliomyelitis bulbar post polio syndrome ]

British Polio Fellowship - Information about this British PPS support group. PPS QA, publications, library, news and message board.

Greater Boston Post-Polio Association - Support and selected resources for polio survivors now experiencing the effects of post-polio syndrome, plus information on several Massachusetts PPS support groups.
Meta Description: [ Website of the Greater Boston Post-Polio Association, which provides information and support for polio survivors who are now experiencing the new and devastating symptoms known as Post-Polio Syndrome. ]

Harvest Center Post-Polio Page - Materials about PPS: including articles, audio tapes, the PPS Computerized Assessment Program.
Meta Description: [ Polio and PPS educational AUDIO tapes, The Post-Polio Institute, The International Centre for Post-Polio Education and Research. How to STOP Being Vampire Bait:Your Personal Stress Annihilation Program,downloadable articles on PPS. ]

How to Prevent Further Disability In Polio Survivors - Silver 1999 - PPS expert lists things to do and not to do.
Meta Description: [ HOW TO PREVENT FURTHER DISABILITY IN POLIO SURVIVORS by Dr. Julie Silver - poliomyelitis pps postpolio post-polio post polio syndrome ]

Lincolnshire Post-Polio Network - An information service for polio survivors and medical professionals. Website offers an expanding online library of currently over one hundred full text articles on post-polio conditions, plus a bi-monthly newsletter and a categorised directory of healthcare resources with descriptions.
Meta Description: [ Lincolnshire Post-Polio Network Main Gate. An Information Service for Polio Survivors & Medical Professionals. The core of this site is a library of well over one hundred full text articles on Post-Polio conditions, many from peer reviewed medical journals. The library is catalogued to assist rea... ]

Living With Post-Polio Syndrome - Medical College of Wisconsin, Living with Post-Polio Syndrome, theories, information and a few links
Meta Description: [ PPS typically affects polio survivors 10 to 40 years after an initial polio attack. In the course of recovery from polio, the body compensates for the loss of nerve cells by sprouting extra nerve endings to restore function to muscles. It is believed that these ]

New Jersey Polio Network - Information and news of interest to polio survivors, their families, and the healthcare community. Links, local chapters, newsletter and conference updates, advocacy.

NINDS Post-Polio Syndrome Information Page - Post-Polio Syndrome information page compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
Meta Description: [ Post-Polio syndrome information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). ]

North Central Florida Post-Polio Support Group - Educates and informs polio survivors, healthcare professionals and family about polio, post-polio syndrome and care in polio vaccination.

Post Polio Awareness Support Society Minnesota - State wide group of Polio survivors organized to assist other survivors.

Post Polio Syndrome Forum - A web discussion forum for people who have or think they have Post Polio Syndrome. A forum where all are welcome, and to share from a-z pertaining to their PPS. disability.

Post Polio Syndrome Responses - A personal web page with links to Polio/PPS and other Disability Information.
Meta Description: [ Information for polio survivors and those who may have family or friend who had polio. PPSR offers support, live chat, email support, and general information regarding PPS and Post Polio Syndrome. ]

Post-Polio Network of New South Wales Australia - PPS information, Australian Support Groups, Seminars, newsletters, articles and general Australian disability information.
Meta Description: [ Post-Polio Network of NSW Inc Directory ]

Post-Polio-Med Email List - Forum for researchers, medical professionals, polio survivors, and anyone interested in PPS: for research and treatment issues, conferences, support group meetings, and other related topics.
Meta Description: [ Post-Polio-Med Listserv email list for questions and answers about post polio syndrome, polio postpolio poliomyelitis ]

PPS Related Events, Seminars and Conferences - Calendar of non-commercial events concerning post-polio syndrome.
Meta Description: [ Post-Polio Syndrome Related Calendar: Conferences, Seminars, Get-To-Gethers, Reunions, Meetings Etc. poliomyelitis pps postpolio post-polio post polio syndrome ]

PPS Survey - A survey for polio survivors with PPS

San Diego Polio Survivors - Support group. Profile, activities, membership, calendar, photographs, contact information.
Meta Description: [ San Diego Polio Survivors, Post polio syndrome, polio ]

404 Saskatchewan Awareness of Post Polio Inc. - Information on polio, post-polio syndrome, diagnosis, treatment, biographies, links to other resources, and equipment for the disabled.

Why PPS Is So Hard To Understand-Bollenbach 1999 - Description of muscle types, muscles indirectly affected by PPS, how PPS differs from ALS, immune vs autoimmune.
Meta Description: [ Why PPS Is So Hard to Understand:Eddie Bollenbach. Description of muscle types, muscles indirectly affected by PPS, how PPS differs from ALS, immune response vs autoimmune. poliomyelitis, pps, postpolio,post-polio ]

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