Gourt > Health > Conditions and Diseases > Immune Disorders > Auto Immune > Myositis > Support Groups
In a support group, members provide each other with various types of nonprofessional, nonmaterial help for a particular shared burdensome characteristic. The help may take the form of providing relevant information, relating personal experiences, listening to others' experiences, providing sympathetic understanding and establishing social networks. A support group may also provide ancillary support, such as serving as a public relations voice or engaging in advocacy.
Maintaining contact
Support groups maintain interpersonal contact among their members in a variety of ways. Most groups have traditionally met in person in group sizes that allowed conversational interaction. Support groups also maintain contact through printed newsletters, telephone chains, internet forums, and mailing lists. Some support groups are exclusively Online_support_groups.
Membership in some support groups is formally controlled, with admission requirements and membership fees. Other groups are "open" and allow anyone to drop in at an advertised meeting, for example, or to participate in an online forum.
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Support Groups :: Immune Disorders
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DermatomyositisSupport Yahoo! Club - A support resource for all Myositis patients, their families, and caregivers. Includes links, a forum, and scheduled Chat.
Meta Description: [ dermatomyositissupport: Dermatomyositis Support - Anyone who has/ knows anyone with Dermatomyositis ]
HealthBoards Myositis Bulletin Board - Health related message board for Myositis patients, families, friends, and caregivers
Meta Description: [ Health related message boards offering discussions of numerous health topics including allergies, cancer, diabetes, heart disease, exercise, attention deficit disorder, diet, and nutrition. ]
JDMS Kids to Pray For - Prayer list of kids who have or once had Juvenile Dermatomyositis.
Meta Description: [ Juvenile Dermatomyositis - Julia's JDMS Diary Page - JDMS Kids to Pray For ]
Juvenile Rheumatic Diseases - A parent support Yahoo! group for those who have a child with JRD such as Lupus, JRA, Scleroderma, Spondyloarthropies, Dermatomyositis.
Meta Description: [ JuvenileRheumaticDiseases: #1 JRD Support for Families World-Wide!! ]
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MAA Myositis Bulletin Board - An active BBS for all Myositis patients and their families, provided by the Myositis Association of America. Membership required.
Meta Description: [ The Myositis Assocation, Page not found ]
Myositis Support Group Discussion Forum - Hosted by MyositisSupportGroup.org
NerveAndMuscle.org - Description of nerve and muscle diseases, treatment, testing, forum, QA, Neurologist contact, and patient stories
Meta Description: [ Aziz Shaibani, M.D., and the staff of The Nerve and Muscle Center of Texas are dedicated to serving the neurological needs of Houston and the surrounding
communities. Diseases treated include myasthenia gravis, ALS (Lou Gehrig's disease), and all types of neuromuscular disorders and neuropathy. ]
OurMyositis - A community of Myositis patients, their families, and caregivers. Messages available as email or on the web.
Meta Description: [ OurMyositis: OurMyositis ]
Request a Prayer - A site by Lori Fisher who invites you to pray for people around the world
Meta Description: [ Ask for prayer and pray for others around the world, with Lori Fisher, a Christian songwriter of praise and worship music found on the CD Elijah Prayed ]
The Cure JM Foundation - Created to raise public awareness of Juvenile Myositis and to fund research for a cure for JM, including Juvenile Dermatomyositis and Juvenile Polymyositis. Find disease details, news stories, research, and a message board.
The Myositis Support Group - A place to learn more about the mysteries of Myositis and meeting other individuals who have been diagnosed. Offers a bulletin board and links to further resources.
Meta Description: [ Welcome to the Myositis Support Group Website. Our site contains useful information about the types of Myositis and discussions from patients and families suffering from the disease. ]
The Myositis Support Group UK - For information and practical advice about this family of diseases. Formerly known as the Dermatomyositis and Polymyositis Support Group
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The Neurology Webforums at MGH - Myositis - A forum for discussing all forms of this disease hosted by the Massachusetts General Hospital
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