Gourt > Health > Conditions and Diseases > Genetic Disorders > Ectodermal Dysplasia
Ectodermal dysplasia is not a single disorder, but a group of closely related conditions. More than 150 different syndromes have been identified.
Ectodermal Dysplasias are described as "heritable conditions in which there are abnormalities of two or more ectodermal structures such as the hair, teeth, nails, sweat glands, cranial-facial structure, digits and other parts of the body." *
The best known person with ectodermal dysplasia is probably actor Michael Berryman.
More on [ Ectodermal dysplasia ]
Skin Disorders :: Conditions and Diseases
Hypohidrotic Ectodermal Dysplasia: 'Third Rock rests VC hopes in rare genetic disease treatments', http://tinyurl.com/ygmlx9v
CheckOrphan (Rare Diseases) Fri, 30 Oct 2009 15:25:41 -0000
Hypohidrotic Ectodermal Dysplasia: 'Third Rock rests VC hopes in rare genetic disease treatments', http://tinyurl.com/ygmlx9v
@anidoll Oh I wish. This place is great. Its a Halloween benefit that helps kids with ectodermal dysplasia. Really cool event.
konzer (Andreas) Tue, 27 Oct 2009 16:54:32 -0000
@anidoll Oh I wish. This place is great. Its a Halloween benefit that helps kids with ectodermal dysplasia. Really cool event.
Ectodermal Dysplasia Society - Information about the organization as well as the ED condition. Includes links, news articles and contact details.
Meta Description: [ Ectodermal Dysplasia Society - a support group for people with ED ]
National Foundation for Ectodermal Dysplasia - ED organization based in North America offering information/advice to individuals and supporting scientific research. Includes a newsletter, publications, FAQs and a list of services.
Meta Description: [ The NFED seeks to enrich the lives of individuals affected by all forms of the ectodermal dysplasia syndromes. ]
NORD: Ectodermal Dysplasias - Offers synonyms, a general discussion and resources.
Meta Description: [ National Organization for Rare Disorders is dedicated to helping people with rare, orphan diseases. Rarediseases.org contains information on the prevention, treatment and cure of rare diseases. ]
The Andy Fund - Describes the health condition of a boy who was born with ectodermal dysplasia with immune deficiency caused by a mutation on the fourth part of the NEMO gene.
Meta Description: [ The andy fund. The story of a brave boy born with a primary immune
deficiency caused by a mutation on the nemo gene. Story of his hospitalizations and constant battle against
infeccions, support from his family and friends including fund raising efforts. Thanks to the collaboration of more than... ]
The CaF Directory - Information about the ectodermal dysplasia disorders, the inheritance patterns and pre-natal diagnosing.
Meta Description: [ Contact a Family is a UK charity for families with disabled children. We offer information on specific conditions and rare disorders. ]
The Ectodermal Dysplasia Mailing List - Includes instructions on joining the list, FAQs and links to further resources.
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