Gourt > Health > Conditions and Diseases > Genetic Disorders > Down Syndrome > Support Groups
In a support group, members provide each other with various types of nonprofessional, nonmaterial help for a particular shared burdensome characteristic. The help may take the form of providing relevant information, relating personal experiences, listening to others' experiences, providing sympathetic understanding and establishing social networks. A support group may also provide ancillary support, such as serving as a public relations voice or engaging in advocacy.
Maintaining contact
Support groups maintain interpersonal contact among their members in a variety of ways. Most groups have traditionally met in person in group sizes that allowed conversational interaction. Support groups also maintain contact through printed newsletters, telephone chains, internet forums, and mailing lists. Some support groups are exclusively Online_support_groups.
Membership in some support groups is formally controlled, with admission requirements and membership fees. Other groups are "open" and allow anyone to drop in at an advertised meeting, for example, or to participate in an online forum.
More on [ Support group ]
Genetic Disorders :: Conditions and Diseases
Schizophrenia and Bipolar Disorder Share Genetic Roots
Wed, 01 Jul 2009 15:45:00 -0400
A trio of genome-wide studies -- collectively the largest to date -- have pinpointed a vast array of genetic variation that cumulatively may account for at least one third of the genetic risk for schizophrenia. One of the studies traced schizophrenia and bipolar disorder, in part, to the same chromosomal neighborhoods.
Imaging Technique Allows Researchers to Monitor Protein Changes in Mouse Tumors
Wed, 01 Jul 2009 12:05:00 -0400
A new imaging technique can monitor, in living mice, the HER2 protein found in above-normal amounts in many cases of breast cancer as well as some ovarian, prostate and lung cancers. This new approach, once validated in mice and pending further experiments, could provide a real-time noninvasive method for identifying tumors in humans who express HER2 and who would be candidates for targeted therapy directed against this protein. It may also provide real-time information that will help clinicians optimize treatment for individual patients. The study, published in the July 2009 issue of The Journal of Nuclear Medicine, was conducted by researchers at the National Cancer Institute (NCI) and the National Institute of Biomedical Imaging and Bioengineering, both parts of the National Institutes of Health.
Dynasty: Influenza Virus in 1918 and Today
Tue, 30 Jun 2009 09:10:00 -0400
The influenza virus that wreaked worldwide havoc in 1918-1919 founded a viral dynasty that persists to this day, according to scientists from the National Institute of Allergy and Infectious Diseases (NIAID), part of the National Institutes of Health. In an article published online on June 29 by the New England Journal of Medicine, authors Anthony S. Fauci, M.D., Jeffery K. Taubenberger, M.D., Ph.D., and David M. Morens, M.D., argue that we have lived in an influenza pandemic era since 1918, and they describe how the novel 2009 H1N1 virus now circling the globe is yet another manifestation of this enduring viral family.
CNN.com - Health
Police: Hospital worker swiped shots, spread hep C
Fri, 03 Jul 2009 18:18:42 -0400
A former hospital employee may have exposed hundreds or thousands of surgical patients to hepatitis C when she replaced clean needles filled with the powerful painkiller fentanyl with her own dirty needles filled with saline solution.
Health.com picks top beach, lake getaways
Fri, 03 Jul 2009 13:47:40 -0400
We know your summer vacation time is precious: You want to land where you can truly relax, breathe fresh air, get in some exercise and eat well -- without breaking the bank. That's why we teamed up with a panel of travel and health experts to help us find the healthiest of the nation's most popular beach and lake towns.
Downs Calgary Down Syndrome Association - Includes newsletters and discussion.
Down Syndrome Liverpool - Local support group for those with DS, their parents and carers. A registered charity in the UK
Meta Description: [ None ]
Down Syndrome Association of Western Australia - Works to support the community to develop the potential of people with Down syndrome (Trisomy 21) to live a valued life.
Meta Description: [ The Down syndrome association of western australian (DSA of WA) works to support the community to develop the potential of people with Down syndrome to live a valued life. ]
Down Syndrome in the Broward County Community - Local information for parents and families with children who have Down syndrome. Specifically in the Broward County area of the State of Florida.
Meta Description: [ Special Needs Children Children Learning DS Down syndrome ]
Down Syndrome Resource Center (DSRC) - A not-for-profit support and interest group for people with Down syndrome in the Capital Region of New York state. Articles, membership, and events.
Meta Description: [ Welcome to the combined webpages of the Down Syndrome Resource Center and Down Syndrome Aim High. ]
Down's Syndrome Association, Lincolnshire Branch - Poems and stories, articles, and book reviews.
Down's Syndrome Association, London Branch, UK - Support group for parents and carers of people with Down's Syndrome.
DS Network, Inc. - Includes bulletin board and events calendar.
Meta Description: [ Arizona-based Down Syndrome information Resource advocacy website, buddywalk, medical information, ]
Eastern Pennsylvania Down Syndrome Center - Includes a message board and chat room, also a list of their coming events.
Edmonton Down Syndrome Society - An organization committed to supporting people and their families. Features membership information, workshops and seminars. Alberta, Canada.
Meta Description: [ The EDSS is a member and volunteer operated organization committed to supporting persons and families with Down Syndrome ]
Families Dealing With Down Syndrome - A family oriented e-mail group that is geared towards the love, support and health of children with Down Syndrome.
Meta Description: [ Here you will find info and support for families raising children with down syndrome. So please come by and check us out. ]
Gold Coast Down Syndrome Organization - In Palm Beach county, FL. Provides a FAQ and inclusion information.
International Mosaic Down Syndrome Association - A non profit organization to help and support parents around the world in research and meeting new people. Includes research, education and contact details.
Meta Description: [ Mosaic Down Syndrome ]
Jesus and Downs - Message board to connect Christian parents who have a loved one with Down Syndrome.
Mosaic Down Syndrome UK - A support group for parents of children born with Mosaic Down Syndrome. Based in the UK, the group warmly welcomes parents from outside the UK.
Meta Description: [ A support group for parents of children with Mosaic Down Syndrome. ]
Oshkosh Down Syndrome Group - For parents of a down syndrome child, located in Oshkosh, Wisconsin. Includes newsletter, links and a photograph gallery.
Piedmont Down Syndrome Support Network - Information about the parent support group for Winston-Salem, North Carolina.
Meta Description: [ Non-profit organization provides support and information to children and families in the Piedmont area of North Carolina who are affected by Down Syndrome. ]
Positively Down - Parent led resource, support and social group for families of children with Down syndrome in and around London Borough of Richmond, UK
The Ups of Downs - Dedicated to parents of children with Down Syndrome. Membership is free and open to anyone. Includes information about Downs, education and literature.
Meta Description: [ Down Syndrome, Downs Syndrome, Information, Support, Chat Room, Message Board ]
Triangle Down Syndrome Network - For families in central North Carolina. Online newsletter and stories about their kids.
Trisomy 21 Online Community - For all those touched by people with all three forms of Trisomy 21. Community includes message forums, chat room, information for parents who have just found out their child has Trisomy 21, pictures and many other information pages and links.
Meta Description: [ An support community for those touched by Trisomy 21. Site includes message boards, chatroom, new parent information, topic information that is updated regularly, photos & more! ]
Uno Mas Down Syndrome Online - Supportive online group of parents friends of kids with Down Syndrome. Message Boards and Personal Stories. Hundreds of photos.
Meta Description: [ Celebrate the uniqueness of people with Down Syndrome. Busy Chatroom, Message Board and Bulletin Board to exchange information with other parents. Listing of great doctors and professionals that care. Calendar of Down Syndrome events. Join our active group of online friends. ]
Yahoo! Groups : Christian-DS-Parents - Mailing list for parents of Down Syndrome children who are practicing Christians.
Meta Description: [ Christian-DS-Parents: This is a mailing list for parents of children with Down Syndrome that are practicing Christians. This is a plce to share each ]
[HealthBoards.com] Down Syndrome Message Board - The archives of this board.
Meta Description: [ Health related message boards offering discussions of numerous health topics including allergies, cancer, diabetes, heart disease, exercise, attention deficit disorder, diet, and nutrition. ]
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