Gourt > Health > Conditions and Diseases > Genetic Disorders > Cystic Fibrosis > Support Groups
In a support group, members provide each other with various types of nonprofessional, nonmaterial help for a particular shared burdensome characteristic. The help may take the form of providing relevant information, relating personal experiences, listening to others' experiences, providing sympathetic understanding and establishing social networks. A support group may also provide ancillary support, such as serving as a public relations voice or engaging in advocacy.
Maintaining contact
Support groups maintain interpersonal contact among their members in a variety of ways. Most groups have traditionally met in person in group sizes that allowed conversational interaction. Support groups also maintain contact through printed newsletters, telephone chains, internet forums, and mailing lists. Some support groups are exclusively Online_support_groups.
Membership in some support groups is formally controlled, with admission requirements and membership fees. Other groups are "open" and allow anyone to drop in at an advertised meeting, for example, or to participate in an online forum.
More on [ Support group ]
Genetic Disorders :: Conditions and Diseases
Chat - Active message board and chat for caregivers and individuals with Cystic Fibrosis. Share support, give advice, offer coping skills. Moderated by volunteers.
CF 4 Christians - A Cystic Fibrosis support group that shares a common bond of Christianity through prayer support, daily devotions and open discussion about CF. Find joining instructions for this Yahoo! group.
Meta Description: [ CF_4_Christians: Cystic Fibrosis 4 Christians ]
Cystic Fibrosis Message Board - Forum for support, and to discuss information, concerns, and treatment options.
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Cystic Fibrosis WebRing - Connects over 50 websites. All sites contain information about Cystic Fibrosis and personal experiences of people living with CF.
Meta Description: [ Tripod on Lycos, established in 1994, is one of the leading personal publishing communities on the Web. Tripod makes it easy for members to create their own blogs, web sites, get a web address (domain) and start publishing online. ]
Cystic-L - Cystic fibrosis information and support, including a vibrant on-line community, via email, a Handbook of information and resources, photos of CFers, a CF Shop and bookstore.
Meta Description: [ CYSTIC-L is a free email
service dedicated to the exchange of information and support specific to
cystic fibrosis. Members include people with CF and those who share their
lives: medical professionals, scientists, researchers, parents, grandparents,
spouses, siblings, friends and significan... ]
International Cystic Fibrosis Support Group - Purpose is to disseminate information concerning Cystic Fibrosis, to give support to those involved with the disease, to provide a forum for the discussion of topics relative to Cystic Fibrosis, to give the members the opportunity to have an exchange of their ideas and interests not directly related to Cystic Fibrosis, and to provide contact with others who have or have an interest in Cystic Fibrosis.
Meta Description: [ The International Cystic Fibrosis Support Group. ]
Michigan Pulmonary Disease Community, Inc. - Organization dedicated to enhancing lives of children and adults with Cystic Fibrosis.
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