A desmoid tumor (sometimes referred to as aggressive fibromatosis) is a rare (3 per million population) tumor that may or may not be part of a genetic syndrome such as familial adenomatous polyposis (FAP).
The superficial form is also known as Dupuytren's fibromatosis, and is small and slow-growing, rarely involving deeper structures. Deep fibromatosis is more aggressive. Histologically they resemble low-grade fibrosarcomas, but they are very infiltrative and tend to recur even after complete resection (systemic metastasis is rare).
Desmoid tumors may be classified as extra-abdominal, abdominal wall, or intra-abdominal (the last is more common in patients with FAP). The lesions may develop in relation to estrogen or abdominal trauma/operations.
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ACOR ListServ: Desmoid Tumor Group - Information about how to join the group. Also archives available.
Desmoid Tumor Research Foundation - Non-profit that funds research, increases awareness, and provides support for patients. Headquartered in Suffern, New York.
Meta Description: [ The Desmoid Tumor Research Foundation: Funds research for treatment of desmoid tumors; Enhances dialogue about research of desmoid tumors; Provides support for desmoid tumor patients. ]
Desmoid Tumor Treatment Options - Opinion, treatment, surgery, therapy, and recommended reading.
eMedicine: Desmoid Tumor by Matthew J Trovato, MD - Overview of the rare benign fibrous neoplasms originating from the musculoaponeurotic structures throughout the body.
Meta Description: [ Desmoid Tumor - Desmoid tumors are histologically benign fibrous neoplasms originating from the musculoaponeurotic structures throughout the body. The term desmoid, coined by Muller in 1838, is derived from the Greek word desmos, which means tendonlike.Desmoid tumors often appear as infiltrativ... ]
The Fibromatosis /Desmoid Tumour Site - Personal experiences of diagnosis and treatment for fibromatosis and the aggressive benign Desmoid tumor.
Meta Description: [ fibromatosis desmoid tumour aggressive fibromatosis desmoid tumour tumor desmoid tumor ]
UCFS Children's Hospital: Desmoid Tumors - Description of the benign tumors, symptoms, diagnosis, and treatment.