Neurological Disorders
Congenital Anomalies :: Neurological Disorders
Pediatric Neurology
Shaken Baby Syndrome :: Child Abuse

Journal of Child Health Care current issue

Children's Nursing Education: Members club or street party?
Randall, D., McTaggart, I. Wed, 20 May 2009 00:00:00 -0000

Creating space: hospital bedside displays as facilitators of communication between children and nurses
Lewis, P., Kerridge, I., Jorden, C. F.C. Wed, 20 May 2009 00:00:00 -0000
Over the past decades there has been a marked change in the physical environment of children's hospitals and the configuration of individual bed spaces. No longer the stark, clinical spaces typical of years gone by, the modern hospital bed space hosts a variety of visual displays reflecting different aspects of the child's life. Building upon ideas introduced by Lewis and informed by a recent qualitative study into hospital bedside displays, this article discusses the role that displays can play in developing, deepening and enriching relationships between nurses, patients and their families in the paediatric hospital environment. It discusses the links between hospital and home, the specific function of the display of photographs and the nurse's role in `knowing' the patient and facilitating links between hospital and home. It concludes that nurses' conscious observations of a visually rich environment may make a positive contribution to the care that they deliver for the benefit of their patients and themselves.
Influences on nurses' scoring of children's post-operative pain
Simons, J., Moseley, L. Wed, 20 May 2009 00:00:00 -0000
There is a lack of clarity as to why some nurses are not delivering optimal pain management to children post-operatively. This retrospective chart review study examined nurses' pain scoring on 175 children during the first 24 hours post-operatively. Data were analysed on the amount of assessments made, assessment scores recorded, as well as the age, gender and type of surgery performed. One-quarter of children had no assessment record of their pain in the first 24 hours post-operatively. When the pain tool was part of an observation chart, nurses recorded more pain scores. Nurses' scoring of children's pain is influenced positively by children under five years of age and those who undergo abdominal surgery. Nurses who had access to one document for recording vital signs as well as pain scores were more likely to assess and record a child's pain score than nurses who had to use a separate chart.

NPR Topics: Children's Health

Are You Over The Acetaminophen Limit?
Wed, 01 Jul 2009 15:09:00 -0400
A Food and Drug Administration advisory panel wants to reduce the public's exposure to the potent painkiller.
Congress Woozy With Health Care Sticker Shock
Sun, 21 Jun 2009 10:20:00 -0400
Guest Host Alison Stewart talks with NPR Senior Washington Editor Ron Elving about the upcoming week in Congress, and how it looks like it will be dominated by big numbers — many in red ink. The cost of overhauling the health care system is giving members of Congress sticker shock, and polls show the public is worried about the cost of multiple bailouts.
Going Gluten-Free At Age 13
Mon, 15 Jun 2009 00:01:00 -0400
Jacob Rosenblum has celiac disease, an autoimmune condition that keeps his body from processing foods with wheat gluten. Even though he can't eat his peanut butter and jelly sandwiches on wheat bread anymore, or most cereals, his family is finding new ways to cook gluten-free and keep him healthy.

 

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Association For Neurologically Impaired Children (AFNIC) - Describes a program for children with neurological disabilities removing triggers that cause frustrations and lead to rages. Services available in Texas, USA.
Meta Description: [ Tourette Syndrome - Texas Support Groups - Books Videos Articles Related Conditions ]

Brianna: Canavan Leukodystrophy - Personal page about how this neurological disorder affects children and their families. Provides links to resources and support.

Epilepsy in Children - Explores what epilepsy is, how it is diagnosed and surgical and other treatment options.
Meta Description: [ Physicians, medical students, and patients can get information about the diagnosis and treatment of neurological diseases and disorders., Diagnosis and treatment of neurological diseases and disorders. University of Chicago Department of Neurology ]

Epilepsy in Young Children - A support platform for parents and other caregivers of children with epilepsy, consisting mostly of stories of individual children.
Meta Description: [ Information to support parents of young children diagnosed with a form of epilepsy ]

500 Integrated Neurocare - An independent service for children and young people and their families in Britain and abroad who may have a suspected neurological or neurodevelopmental impairment.

International Foundation for Alternating Hemiplegia of Childhood - Run by parents of children with AHC. Provides information, support and links regarding this rare neurological disorder.

404 L'Oiseau Bleu (The Blue Bird) - Non-profit organisation to fight against Sclerosing Subacute Panencephalitis, a.k.a. Van Bogaert Disease, a progressive neurological disorder caused by the measles virus. Includes information about the disease.
Meta Description: [ Site de L’Oiseau Bleu, association de lutte contre la panencéphalite subaiguë sclérosante post-rougeole ]

Landau-Kleffner Syndrome - Information sheet compiled by National Institute of Neurological Disorders and Stroke.
Meta Description: [ Landau-Kleffner Syndrome information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS). ]

NINDS: Infantile Spasms - Information including description, treatment options, prognosis, research and resource links.
Meta Description: [ Infantile spasms (West Syndrome) information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS). ]

Spinal Muscular Atrophy (SMA) - Provides information aimed at health professionals about this disease. Includes definition, classification, epidemiology, clinical features, therapy and research into the congenital condition.

The Association for Comprehensive NeuroTherapy (ACN) - Dedicated to exploring advanced and alternative treatments for neurological conditions. Home of the Latitudes newsletter. Presently focusing on autism, Tourette syndrome, attention deficit disorder, and learning disabilities.
Meta Description: [ Association for Comprehensive NeuroTherapy (ACN): Complementary and Alternative Treatments for ADHD, Tourette syndrome, Autism, Learning Disabilities, Obsessive Compulsive Disorder, Depression; Publication: Latitudes. ]

Understanding Spinal Muscular Atrophy - Offers extensive information for parents about the three forms of this disease: type I (Werdnig-Hoffman disease), type II, and type III (Kugelberg-Welander).